Walberton, Binsted and West Barnham Sick Poor Fund
This charity, whose ex-officio trustees are the Vicar and Churchwardens, distributes the investment income from the sale of the District Nurse's house in the village. We meet twice a year and pay for regular food vouchers and telephone lifelines. There are many other one-off grants that we can make such as help towards heating costs, transport, school uniforms and holidays for children. We also make grants for equipment such as the defibrillator at Fontwell and the disabled toilet at CP@Ws.
To receive help from the charity, you need to be either sick or poor and living or working in the area of benefit or alternatively, attending a church, a club or educational establishment in the area of benefit.
Do contact the Vicar or Churchwardens if you know of anyone in need of our help
Discovering your child has a life-threatening condition is devastating news and all too often parents don’t know where to turn to get the extra information, help and nursing support at home, they so desperately need.
The Sussex Snowdrop Trust was founded 24 years ago to bridge the gap – and the services they provide to children and their families are even more in demand today than they were then. Nowadays children are at home very quickly after operations, travel daily to hospital for radiotherapy treatment and children with complex needs are at home and cared for by their parents. They need the vital support of a qualified children's nurse to enable them to cope with the day to day demands of looking after a very sick child.
Snowdrop provides nursing care at home for local children, (0 to 19 year olds), who have been diagnosed with a life-threatening or terminal illness, such as leukaemia, cancer and cystic fibrosis.
The nurses take bloods and samples so the children don’t have to go to hospital and the support they give to families is wide ranging. Senior nurse Jane says: “We keep in regular contact with parents and families. We talk to them about the illness, give advice and information to them, the children, and other professionals about the condition and the care the child requires.” Jane admits the job can be challenging. “But it’s very rewarding”, she says: “We recognise and value the child’s right to be nursed at home, so our number one priority is always to meet the needs of the family and to give them the support they need with the least disruption possible.”
The Snowdrop nurses also provide end of life care within the comfort, reassurance and familiarity of home. Since Snowdrop was founded, nearly all children in our area, who have become terminally ill, have been at home during this very sad time. Mothers say that being able to be at home with their child, gives them such precious time together. They are with them when they wake up, throughout the day and they are the ones to put them to bed at night.
The Snowdrop counsellor helps by befriending and supporting any member of the family throughout the child’s illness and he also gives bereavement counselling.
A Snowdrop parent said that “We were very lucky to have had access to The Snowdrop Trust. We couldn’t have done it all without their support.”
For more information either pop into see us at 3 William Booker Yard, Walberton. BN18 0PF
Or go to www.thesussexsnowdroptrust.com
St Wilfrid’s Hospice is much more than a building. We provide tailored end of life care both in the community and at our Hospice, supporting our patients living with a terminal illness, and their family and friends.All our vital services are provided free of charge, thanks to the generous support of fundraisers and donors. Only 13% of our running costs are currently met by the NHS and we rely on our community to fund the remainder, which equates to just over £7 million each year.
Visit us at www.stwh.co.uk
JustDifferent was founded in 2008 by Walberton resident Toby Hewson with the aim of challenging and changing negative attitudes toward disability and difference.
JustDifferent’s vision is of a world where disabled people are accepted and included as equal members of society and where everyone respects each other regardless of their abilities or disabilities.
Our eye opening and interactive workshop sessions are delivered by disabled adults in educational establishments, various community groups including Scouting and Guide clubs, local Rotary, Lions groups and also in the workplace.
Since 2008 the team at JustDifferent have delivered over 5,600 workshop sessions that have benefitted over 182,000 children and young people. Our work takes place across the South East, South West, East Anglia and Greater London. Across West Sussex over 25,000 children and young people have benefitted from our activity.
A huge amount of ongoing work has gone into to ensuring that our activity compliments the learning journey of the next generation. This involves working with close partners in schools and our disabled presenters to ensure that the sessions are appropriate to each key stage and that they are relevant to each curriculum. Our Presenters are a mixed age range, which works well as they all have very different life experiences, which certainly adds interest and different perspectives throughout the sessions.
For more information please call the team on 01243 778275 or visit www.justdifferent.org